Protesting Autism Speaks

A delayed post on my end, but I have my candidacy exams as an excuse. (I’ve completed the written portion, and I move onto the oral this Thursday, yikes.)

On October 11, I helped to lead an ASAN protest against the Autism Speaks walk at Ohio State’s campus. As I now have the benefit of being three weeks removed from the protest — as well as reading/hearing/seeing reports of other ASAN-led protests across the country — I feel a sense of accomplishment. I’d certainly never organized a protest before — and I’d only attended my first protest this past June, which was a disability rights protest against Ohio’s proposal to cut funding for community supports (and Ohio’s proposal to increase funding for nursing homes, ack). In June, I took notes about chanting and marching, and the chorus of Our homes, not nursing homes! is still present in my brain. (We were loud. And we were quickly hoarse.)

I suppose, on some level, I feel perpetually frustrated here at Ohio State. Our protest didn’t receive media coverage, which was a disappointment — though, to be honest, I’m not the sort of person who likes to be noticed, per se. (I’m not media material. I’m quiet-and-behind-the-scenes material.) But I also suppose the good news is that, really, Columbus’s Walk Now for Autism hardly received any media coverage itself. There was a quick spot on NBC4 (which was to be expected, given that one of their anchors has an autistic son and the station itself co-sponsored the walk), as well as a photo slideshow on The Dispatch website (the Columbus newspaper). Though my search for pro-Autism Speaks media coverage wasn’t entirely exhaustive, I doubt there was any other coverage (at least any other coverage of note). I taped all the news shows that evening, and no one else mentioned the walk. NBC4 seemed to monopolize it.

But back to the frustration: On campus, Autism Speaks seems to be everywhere. And it’s partly a matter of manpower and resources — they’ve got more than we do. By far. And our university president keeps uncritically singing their praises (to the point where we’ve drafted a petition and plan on standing on a street corner and asking passersby for signatures). I tire of seeing their flyers daily — flyers that variously portray autism as an epidemic, a puzzle, a burden on taxpayers, a fate worse than a combination of fatal situations. And I grow even angrier when I see flyers that read Got questions about autism? We’ve got answers!

Dear god. My colleagues, students, and professors might go to these people for answers?

I also love (not) how some of their past campus fundraisers have included things like Mary Kay parties, sorority cookouts at midnight, or shop-a-thons. Their events sound so autistic-unfriendly that, if it weren’t so egregious, I’d find it utterly hilarious.

I’ll end this post with photos. Several of these photos have circulated the blogosphere by now, so I’ll try and post those that weren’t featured (that I know of) in other blogs. The protest was very successful: nineteen people braved the throngs of “puzzled” walkers. We endured angry honks, middle fingers, haughty walking mothers, and entitled white men yelling, “You’re a bunch of f—ing idiots!” But we also had productive conversations with parents, and we were even thanked by autistic people who had been dragged to the walk.

This is me holding a sign reading Autism Speaks does not speak for me
This is me holding a sign reading “Autism Speaks does not speak for me”
Tim Jensen holds an orange sign that reads “Nothing about us without us”; Chris Lindemann holds flyers; Kate Comer holds a sign that reads “Diverse NOT Diseased”; and Jonathan Buehl holds a yellow sign that reads “Nothing about us without us”
Jonathan Buehl; Brenda Brueggemann with a sign that reads “Disability Rights”; me with a sign that reads “I can speak 4 myself”; Jason Smith with a sign that reads “First class autistic, second class citizen”; Justin Rooney with a sign that reads “Nothing about us without us”

I hate noise

…says someone in the midst of studying for her candidacy exams.

Everything is really loud. The wind clanging the blinds together. The guy upstairs walking to what I presume is his refrigerator, given the sound patterns. Me typing. Me talking — even when people tell me to speak up. (I’m always loud. Don’t they get it? Loud, loud, loud.) Cars — need I say more about cars? The hallways at school, filled with feet and hands and mouths and papers and hair and eyelids and trashcans and mop buckets and plastic wheels and cellphones and clocks (some living, some dead) and doors and windows and air units and keyboards and beeps and teeth and light switches and flickering fluorescents and benches and…

I am home today, writing. And reading. I’m just wrapping up a five-week writing course, a course that I taught and enjoyed and feel exhausted over. The quarter system is fast-paced. The half-quarter system is even more fast-paced.

Scissors make noise. As does cardstock. But cutting out rainbow infinity signs is a welcome break from grading, a more welcoming sort of noise:

Rainbow infinity sign cut-outs on a black chair
Rainbow infinity sign cut-outs on a black chair

Crickets.

Really? I never would have guessed that you’re neurotypical.

For starters, you don’t look neurotypical. I should know, after all, what neurotypicals look like. I saw one on TV once. And my cousin’s dog-walker’s kid sister is extremely neurotypical — she cracks her gum and wants to be like Paris Hilton when she grows up. Her poor mother.

You’re too well-adjusted to be a neurotypical. You alphabetize the contents of your closet. Neurotypicals can’t even find the will to put their laundered underwear in their dresser drawers. They’re that cognitively damaged.

You sound nothing like a neurotypical. You’re succinct and honest, and not once have I ever heard you gossip. And, sure, you like to watch the occasional chick flick, but that’s a human thing, not a disability thing. If you were really, truly neurotypical, you’d blubber incessantly and inconsolably over trivial things like 10 Things I Hate about You or the entirety of the E! Channel.

You can’t read anyone’s mind. And everyone knows that neurotypicals are so afflicted that they can tune into others’ thoughts. They’ve got these savant-like cognitive powers that border ESP sometimes, yet they can’t even round off Pi to four digits. Fascinating, but so tragic.

I know you have three official diagnoses and all, but I think you need a fourth opinion here. I mean… you… neurotypical? Seriously? I read a WebMD article on neurotypicality once. These people are socially deluded. Your team of “board-certified” and “world-renowned” neurologists probably have some ins with big pharma or something.

I saw this television documentary on the neurotypical “spectrum” last week. All these poor little kids, suffering horribly. The fact that you don’t want to drive a metal stake through your skull in order to end your horrific existence means there’s absolutely no way that you’re neurotypical. Goodness knows that real neurotypicals want to be cured.

I saw you wearing an IEEE t-shirt once. Neurotypicals aren’t even sentient enough to pronounce “engineer,” never mind understand what an engineer does.

Do you really want this label? Labels have stigma. They create their own realities, and you might get trapped in the process. Do you really want to become an addled hairdresser, or worse, a politician? I mean, sure, some neurotypicals have found monetary “success” — e.g., Fran Drescher, Adam Sandler, or Dick Cheney — but they’re the exception, not the norm. Most neurotypicals end up in trailer parks, saddled with 40K in student loans, 30K in credit card debt, a closet full of “nothing to wear,” two ex-husbands, and 2.5 children to boot. I’m really afraid that this label will set you on the path to destruction.

You’re a guy.

Don’t you know that all neurotypicals speak? In fact, they don’t shut up. You and your PDA-mobile-text-machine thing just don’t fit the NT mold.

If you were really a neurotypical, you would have been diagnosed as a toddler. Such a severe cognitive handicap would be obvious, not something that would be misdiagnosed or overlooked. It doesn’t matter that neurotypicality wasn’t included in the DSM until four hours ago — people would have known. NT children are the pretty-in-pink brats running around with fake telephones, the kids who pester their poor autistic siblings to play “dress up” and “let’s go to the mall.” They bring the whole family down with them. The disease is just that bad.

Neurotypicals crave romance and affection. They have constant desires to be held, to be told how wonderful they are. You’ve only had one partner, maybe two. Really, you’re just not that “severe” when it comes to attention-seeking and sexuality.

Did you know that one NT child costs the average school district about $25,000 annually? Imagine all the non-NT kids we could be helping with that money. So, how dare you claim to be NT! I think you just want to mooch off the system. You and your excuses.

But, honestly, you can’t be NT because I, as an autistic person, say so. The sheer fact that you would risk putting yourself in a (dis)abled position endows me with the power to name and claim (dis)ability — or lack thereof — for you. Don’t you realize that (dis)abled people cannot name themselves, cannot label themselves, cannot enculturate themselves, cannot take pride in themselves? Don’t you realize that those who are deemed normative will always know more than those who are deemed non-normative?

Don’t you realize that everyone else will always know more about you than you?